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Mali and Me

Sharing life as a business owner, chronic illness advocate and stoma blogger

Sharing life as a business owner,
chronic illness advocate and stoma blogger

AS SEEN IN:

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AS SEEN IN:

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Welcome Readers,

MY NAME IS IMALI

I’m a proud Wife, Founder and Stoma owner, based in the South of the UK. This is my space on the internet to share snippets from my day-to-day life, along with things I’ve learnt along the way. My aim is to raise awareness for EDS, Ulcerative Colitis, Autism and Arthritis.

READ MORE ABOUT ME

Welcome Readers,

MY NAME IS IMALI

I’m a proud Wife, Founder and Stoma owner, based in the South of the UK. This is my space on the internet to share snippets from my day-to-day life, along with things I’ve learnt along the way. My aim is to raise awareness for EDS, Ulcerative Colitis, Autism and Arthritis.

READ MORE ABOUT ME

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  • Photos from my most recent unexpected hospital admission ✨I feel as if my body always takes everybody by shock when it throws these curveballs - myself included, as I don’t seem to get much (if any) warning. Literally anything from having a busy day, to leaving the house, to catching a virus or a hormonal fluctuation can cause me to enter a sudden adrenal crisis and can render me admitted into hospital in under a couple of hours.The upshot of this stay is that it was a fluke crisis, likely worsened by my ongoing chronic UTI (more on that coming at the end of November… sighs) but it has got me thinking - there’s surely got to be a better way to monitor and manage adrenal insufficiency than ‘winging it’!?This time, what triggered me calling the ambulance was waking confused from deep sleep - not even being able to remember what medication I was meant to take… I was lucky, a few minutes later and it could’ve been so much worse!The three suggestions I’ve had made are:1) Get 24 hour self-funded at home care - expensive and honestly, difficult to manage without losing a considerable amount of independence and having a constant nursing presence, which feels like too much in the context.2) Utilise an assistance animal - I would love this, and the early warning of the way that when trained they can sense if you have a crisis coming would be life changing. However, it takes time and a huge amount of energy to train them, and again, charities are stretched to breaking point so it’s likely to be self-funding with an independent animal I would need to train, all whilst being poorly.3) An adrenal dex com? - Similar to the devices that diabetic patients are able to utilise, a small device that tracks your adrenal levels and bleeps when they crash. According to Google, under development but not yet in production. I’ve reached out to some colleges in the UK and the US - would love to help to prototype this. Totally life-changing for patients like me!Any other suggestions welcome, in the meantime, I’ll keep you posted.
    1 day ago
  • The Disney makeup of dreams... ✨ Which look is your favourite? I truly felt like a princess every single day. 🏰VD - Image 1: A white woman with brown wavy hair, wearing lilac Rapunzel inspired Disney ears that sparkle. I also have a gold tiara on. I am smiling at the camera, wearing pink glasses and a lilac dress. In the background is the pink DLP castle. Image 2: A sideways view of me, a white woman, with brown hair in a half up, half down style. I am wearing black Adventure World ears, with colourful gradients all over in sparkle. You can see my black Minnie earrings, with face glitter and hand drawn Mickey ear freckles with my pink glasses. Image 3: A front view of the previous makeup look, now with the face glitter more obvious and my gingham red check top in view. I have taken the ears off in this selfie. Image 4: My hair is in plaits, by my sides with orange Mickey pumpkin earrings visible. I have blue snowflake eyeshadow and a blue top. Image 5: A close up of the silver glitter on my face and the snowflake I drew on my eyes. Pumpkin earrings in shot.
    5 days ago
  • This World Arthritis Day let's spread some awareness about how the condition can affect young people.VD: A white woman, with brown curled hair, wearing red lipstick. Her outfit consists of a red gingham top with a peter pan collar and a red vest top underneath. She is sitting directly in front of the camera, talking.
    1 week ago
  • It’s been such an exciting and busy week… being featured on the local BBC as well as in the paper. Still waiting to hear from @mattel / @barbie 💕VD: A white woman with brown hair in a plait, wearing a stripe top. She is holding a newspaper which shows a photograph of her and reads ‘Imali in a stoma bag request to Barbie Makers’. She is smiling.(Hashtags) #Stoma #Ostomate #Newspaper
    1 week ago
  • Episode 6 of The Wheel Deal: Can I lift it? Q50 wheelchairsVD: A white woman with brown hair, wearing a white top and jean shorts. She is standing next to two black folding powerchairs.
    2 weeks ago
  • I've collected over 100+ Barbies throughout my life, but I've never seen one that reflects my experience of living with a stoma. This World Ostomy Day, I'm calling on Mattel to change that 💖VD: A wall of Barbies in Imali's flat. She keeps showing different dolls up close in their boxes and then at the end it cuts to her, stood in front of her Barbies with her stoma on show. She has a pink bag cover on and a light pink top.
    2 weeks ago
  • Taylor said Paris, I heard Disneyland. Close enough, right?VD: A white woman, with brown hair which is half up and half town in a sort of Mickey Mouse style, wearing a red gingham top. She is covered in glitter, and filming in selfie mode whilst sitting in her wheelchair. She pans around half way through the video, to show the legendary pink castle at Disneyland Paris. She's lip syncing to a Taylor Swift song.
    2 weeks ago

Introducing The Chronic Club

Being iconic doesn’t take a day off. Neither do we.

Coming Soon

My Motability Car

Proudly working with Snows SEAT CUPRA as a Motability Ambassador

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