Mali and Me

Sharing life as a business owner, chronic illness advocate and stoma blogger

Sharing life as a business owner,
chronic illness advocate and stoma blogger

AS SEEN IN:

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AS SEEN IN:

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Welcome Readers,

MY NAME IS IMALI

I’m a proud Wife, Founder and Stoma owner, based in the South of the UK. This is my space on the internet to share snippets from my day-to-day life, along with things I’ve learnt along the way. My aim is to raise awareness for EDS, Ulcerative Colitis, Autism and Arthritis.

Welcome Readers,

MY NAME IS IMALI

I’m a proud Wife, Founder and Stoma owner, based in the South of the UK. This is my space on the internet to share snippets from my day-to-day life, along with things I’ve learnt along the way. My aim is to raise awareness for EDS, Ulcerative Colitis, Autism and Arthritis.

Winter Gardens Carpark – Bournemouth: An Accessibility Nightmare!

Fighting for Care: When the NHS Fails Disabled Patients

No colon, still rollin’ – My new wheels – Sunrise Medical Quickie Carbon Q50R

  • I missed posting for Blue Sunday this year. I didn’t see many others sharing, and I felt too awkward to be the only one in my feed. So I let it slide, quietly moving on. But I can’t help feeling that every day should be a reminder – not just a single Sunday in May.Every day, people of all ages are confined to their beds, their homes, their thoughts – battling an illness that remains largely unseen and misunderstood. Everyone’s experience with ME is different. Mine started at just two years old.ME doesn’t take a day off. It doesn’t get better with healthy eating or a “positive mindset.” It doesn’t care whether you call it Myalgic Encephalomyelitis, Long-Covid or Chronic Fatigue Syndrome. It doesn’t wait for awareness campaigns or fundraising events. It persists in the quiet moments, in the canceled plans, in the ideas put on hold for another day.To those who live with this day in and day out – you are not forgotten in the better moments. You’re always in my mind. Every experience I get to have is not taken for granted. Part of the reason why I blog and share my experiences is because I remember the days of living through social media, using it as a lens to the “normal” world.Let this be a call to remember that awareness isn’t confined to a single day. It’s in the stories we share, the support we offer, and the compassion we extend. Let’s continue to shed light on the realities of ME, every day.VD: A young white woman with pink hair, sitting in a beautiful garden that's bursting with colour. She is looking down as a flowery teapot, while she pours tea into a mug.
    7 days ago
  • AD: My first time trying out a folding walking stick - and I'm not going back!
It's so handy to be able to stash it under my wheelchair, and grab it conveniently when I need it.Fancy having a read of the new @careco_mobility Life Magazine? Visit their website or pop in-store - www.careco.co.ukAD: Paid Partnership and Gifted productVD: A white woman with pink hair, wearing a pink suit. She has a blue folding walking stick in her hand.
    1 week ago
  • If it wasn’t for the flexible working setup we’ve built at Inkfire, I honestly wouldn’t be able to hold down a job. That might sound dramatic - but it’s the truth.Take this week, for example: I’ve had a medical appointment every single day, right in the middle of my working hours. That’s not the kind of thing most traditional jobs are built to accommodate - and to be fair, I get why. But for people like me, whose lives revolve around hospital visits, flares, and recovery time, the “normal” 9–5 just doesn’t work.But that doesn’t mean it’s the end of the road. Sometimes, when you’re chronically ill, you have to build something that works for you - even if it looks nothing like what everyone else is doing.Your version of managing will look different to others - and that’s okay. Don’t feel like you’re failing just because your day-to-day isn’t printed in a standard font.Some of the most powerful stories are told in bold, in italics, or even handwritten in the margins.You’re still the author.📷 Snippet taken from my recent speech at the House Of Lords.VD: A white woman, with pink hair, wearing a pink suit set. She is sitting in her wheelchair with a microphone, speaking to a group of people.
    1 week ago
  • I've been featured!
The team over at the @pituitaryfoundation have published a snippet of my story with Steroid-induced Cushing's in the summer edition of their pituitary life magazine.VD: A screenshot of my article in the pituitary life magazine with some photos of me. I will be sharing the details of this feature on my website with a transcript, so if you'd like to read the article for yourself or have it read to your by your screen reader, please pop me a message and I'll send you the link!
    1 week ago
  • I made this video a while ago, but I forgot to post it. It was when the blossom was out (and looking stunning). This was filmed in the morning, by the afternoon I was in hospital. The realities of how quickly health can change with chronic illness!Each of these outfits is secondhand - either a @vinted find, or from a charity shop. I love secondhand shopping - it's one of my favourite things!The only new piece in my lookbook are my @crocseurope wedges - they're soooo comfy and a staple for me in the summer!VD: A young woman with pink hair, wearing various summer dresses and outfits, in her garden, walking around.
    1 week ago
  • AD: Look what’s just landed! The latest Life magazine from CareCo is here, and I’m settling in for a good read - kettle on, feet up ☕Inside, you’ll find tips, stories from other disabled people, and some brilliant extras - including a tip-on for a free folding walking stick when you spend over £20 in-store. Visit @careco_mobility to find your nearest store.AD: Paid PartnershipVD: Various clips of getting the CareCo Life Magazine, which has photos of a couple using a mobility scooter on the front. The camera then pans to Imali, a white woman with pink hair, flicking through the magazine on the sofa.
    2 weeks ago
  • Enjoy everyday freedom with a brand-new vehicle on the Motability Scheme. Simply exchange your qualifying mobility allowance for a brand-new car or Wheelchair Accessible Vehicle (WAV).VD: Imali, a young woman with pink hair and a black wheelchair, sitting next to various cars from different brands such as MG, SEAT, CUPRA and Ford.@motabilityscheme
    2 weeks ago

Introducing The Chronic Club

Being iconic doesn’t take a day off. Neither do we.

My Motability Car

Proudly working with Snows SEAT CUPRA as a Motability Ambassador

Snow's Ambassador